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Studies Looking for Participants
May 2021-August 31, 2021 THIS IS IMPORTANT FOR THOSE WHO ARE are 15, 16 or 17 years old Living in
They are now recruiting from Ontario, Alberta, New Brunswick and Nova Scotia: Until August 31, 2021
THEY NEED YOUTH VOICES!
Please share with those you know might be interested. $40 in gift cards for eligible participants ($20 after each online study visit).
We need youth aged 15-17 with Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum Disorder or Spina Bifida to help us test a new app about health care transitions. Right now we need youth from Nova Scotia, New Brunswick, Alberta and Ontario, but we’ll be looking for youth from other provinces soon too.
To join the study, contact: galuppi@mcmaster.ca
See our videos about the study here:
READYorNotTM
Brain-Based Disabilities (BBD) Trial
What is this study about?
The MyREADYTransitionTM BBD App was created to help youth prepare for health care transition. That’s when youth make the change from getting services from the children’s health care team, the children’s hospital or the children’s treatment centre to looking after their own health in adult services.
We hope the app will help youth with things like learning about their health, knowing what questions to ask and when to ask for help.
Why is the study being done?
This study will tell us if there is a benefit to using the app. All youth will get the same care they have been getting.
Half of study participants will use the app and half will not. There’s an equal chance of being in either group.
After the study is done, youth in both groups will have a chance to use the app.
Who can participate?
You may be eligible for this study if:
You are 15, 16 or 17 years old
You have Autism Spectrum Disorder, Cerebral Palsy, Epilepsy, Fetal Alcohol Spectrum Disorder or Spina Bifida; and
You are thinking about being more independent in taking charge of your own care, such as asking or answering questions when you are with a doctor or nurse.
Interested to hear more?
Contact:
Barb Galuppi or Nadilein Mahlberg
Telephone: 905-525-9140, extension 27852
galuppi@mcmaster.ca
Who is behind this research?
This research is run by McMaster University (Dr. Jan Willem Gorter) and McGill University (Dr. Ariane Marelli) in collaboration with Hamilton Health Sciences.
This study has been reviewed by the Hamilton Integrated Research Ethics Board.
Learn more about this study at:
Department of Psychology ~ McMaster University ~ NEW STUDY May 2014
SCHOOL OF PSYCHOLOGY
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