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If you would like to submit a testimonial about your experiences with the Canadian National Autism Foundation, please email us your testimonial and we will post it here. Thank you to all those who have submitted a testimonial to us.
Tina... This is something else I want to say to you, Tina. I want to express how grateful I was to be able to make contact with you. You've been generous enough with your time to have two phone conversations with me, last November 2022 and just recently, a few weeks ago. This has meant a great deal to me, given that you were one of only a few people (even within the autism community) to respond to me at all, and that fact makes it seem as if the indifference to these issues within our society is almost insurmountable. What also became clear to me (during our first conversation last November) is that you possess not only an understanding but also a deep insight into the autistic nature. You clearly grasped my life experiences and their ramifications immediately, even before I had a chance to provide you with all the details.I can't describe the comfort that that gives someone like myself living as an autistic, knowing that there are individuals out there (who are either autistic themselves or must deal intimately in their lives with someone who is) who really do "get it". The best knowledge and insight gained is direct experiential knowledge and insight.
Our society labours under the misconception that insight such as yours can only be attained by earning academic credentials that, in turn, imbue that individual with expertise, and as such, they are considered "experts". This is utter nonsense and frankly, is purely based on elitism and egos. In fact, the word "expert" should be stricken from the dictionary. As a species, we are only as good as our current state of knowledge, and that is ever-changing constantly. If there are indeed individuals that come close to being "experts", it is direct experiential knowledge that made them that way, not academic credentials. Anyone can be brilliant, no matter what their background or education. I have strong opinions on this topic Tina, so I hope you don't mind me sharing my perspective on this. Thanks so much once again Tina. I'm looking forward to speaking with you further. Best Kate (Aspergers) Canada -2023
Tina- I am a very blessed mother of boy/girl twins - though I had tried for many years - they finally arrived when I turned 42 - a bit late to start being a mom - but career had always come first and we were so happy when they showed up - healthy. Most moms and dads hope and pray their children are born healthy - and usually think 10 fingers and 10 toes is a good start. But for parents of children with autism the joy and can be extinguished as their children turn 2 or 3 and they notice "something" is different. The statistics for autisim has increased in recent years and several of my closest girlfriends are dealing with this issue. The problem is autism doesn't fit in a neat little package or is something a doctor can give a pill and cure and often your son and daughter looks "normal" on the outside - but something is definately different. How do you know, how do cope, how do you help? As I watched my friends deal with endless days and nights of frustration I am grateful that Tina and her foundation have set up and give tireless so much energy to help educate people about what is going on, some of the myths and some of the help that is now available. As a health and fitness expert I have been witnessing and researching the effects of food and movement on children deal with autism and it seems to have a positive effect - while not a cure all - it can be a step in the right direction and for that and some many other reason - I support and believe in what Tina's doing. Raising children should be a joy and a blessing - let's help make that a reality for all parents. With love and hope in my heart for us all -- "My son is called Chonga AbdulRahman Adaku born on 5th June, 2002. We
“one day .. i was basically pulling my hair out ...my son who has,always been unique ..was having more issues now that he started school ... i guess i have been in denial a long time ..anyhow .. he fitted aspergers to aT.... so i call info they give me this number and i call it .. it is tina at the autism foundation in canada...I can tell you .. im american .. but tinahas helped me more then any american autism foundation ..but on one of me and tina's conversations she was at home with her son and was answering from home .. see how dedicated she is ... and here i was having a hard time dealing with my sons aspergers .. and i realized .. listening to tina talking to her son who has autism in the background .. and who has it worse then my own son ... and here she is running this autism center and helping others .. that there is light at the end of the tunnel ... i salute tina . and her family god bless them ... and thanks tina for showing me ..our children are so many more things then being just a kid with autism or aspergers .. or pdd nos .. which pdd nos is one of the diagnoses that my sons rx now ....... thanks tina ... love tammy ... ps.. it was worth the $500.00 dollar phone bill i got from calling you :) tammy davis kansas, USA .. son with pdd nos”
Your website is wonderful and sooo informative.The song is truly touching and reaches into a special understanding of our special children.
"When we found out that our 2 yr old twins were both autistic we were totaly lost. We didnt know anything about ASD and didnt even know where to look for answers. We were told they may never speak. We had so many questions and so few answers. We didn`t know where to even look as we were told that not much is known about this dissorder. In my search for answers, I came into contact with The Canadian National Autism Foundation. They provided us with alot of information about what to expect in the future, and gave us the tools to deal with this. We can now see some hope for our girls. They are now recieving the help and interaction that they so desperately need. The Foundation is there whenever we need them. I cound never do enough to repay them. If it wasn`t for them, we would still be in the dark. They have provided us with so many resources that are really making a positive effect on the twins. It has effected our whole family. We are alot more aware of what is going on with our girls. We can see their improvement. The Foundation has given me the insparation and the confidence to be more effective in helping them learn and grow. I believe that they will grow up to be normal happy funtioning adults. The Foundation truley does the work of angels. They work tirelessly to help families that are so desperate for help and have nowhere to turn. They provide a badly needed service that is delivered straight from their hearts. I really don`t know where we would be at this point if it wasn`t for the Foundation. We need this service now and in the future and I have no doubt they will always be there for us. I cannot thank Tina or the Foundation enough for the hope they have given us. Our family thanks you." From the Howard/Ceretti family, Hamilton, ON
Thank you I would like to say thank you so much for all of your help. I do not know what I would done without your support and understanding. Your knowledge has been outstanding. I am so glad that I found out about your foundation which lead me to you. You helped me immediately where I could get no answers no matter where I called. Thank you for being you. Christine, Stoney Creek, ON
Thank you for helping me to understand my children more so that I can help them. You have helped me out so much. I am glad I met you and spokewith you. It`s nice to have someone there to listen and help you. Thank you. Tina, Hamilton, ON
Thank you again for all the support and of course the mountain of resourcesyou have to share with families. Help comes in many different ways and I am glad to of found you. Sincerely, Tamara, Grimsby, ON
Thank you for helping me with the SSAH where I was getting no answers or support. You knew the right people to contact to get my 11/2 wait to move Thank you again S.Z., Ottawa, ON
Thank you so much Tina for your email. I can't tell you how much it has helped me to read some of this. Just when I think me and my husband are convinced that we need to look at our other options out there and POSSIBLY consider segregation, we get some really good days and I re-think everything again. It really helped me to hear you talk about HOW your son's programming is modified. I can relate to your volcano example as this is how we are pretty much modifying the curriculum for ourselves. I am glad to know that other kids programs are modified to this extent as well. I always had the feeling that when a kid is in an integrated setting, he is pretty much expected to do MOST of what the kids are doing in the class. I am now starting to realize that this is NOT true. They are expected to study the same areas (ie. Volcanoes, or Forces) but to the extent of their abilities and to the degree of practicality that makes most sense to them. Your email helped me in more ways than you know. Thank you so much! Lisa, Ontario
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